this post was submitted on 27 Nov 2023
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It seems relatively sane:
Holy shit that's even more restrictive than Queensland's. Here it's 12 months for any disease. Which is already far too short a timeline for some diseases, particularly neurodegenerative ones.
I looked into the legislation and it seems to specifically disallow VAD for these cases that you're talking about (minor edits made for brevity):
Yeah I knew it was written in such a way that would effectively mean dementia is completely ineligible for VAD. Disappointing to see it done as explicitly as that, though.
I understand that there are issues regarding receiving informed consent from someone suffering from e.g., late stage dementia. I wish we could see some kind of process that people are able to undertake before they get to this stage that would allow them to be approved for VAD then to be acted on later.
It's a huge step in the right direction. We need to keep being aware of the issue, discuss it with the people around us in order to create further acceptance. Maybe one day we will see thoughtful legislation expand on this.
To short a time line... or too long?
Too short by far. Some neurodegenerative diseases can leave their victims in a state where they don’t even know who they are for over a decade. Neither they nor their family should have to suffer through that.