this post was submitted on 10 Nov 2023
434 points (94.8% liked)
Technology
58133 readers
4472 users here now
This is a most excellent place for technology news and articles.
Our Rules
- Follow the lemmy.world rules.
- Only tech related content.
- Be excellent to each another!
- Mod approved content bots can post up to 10 articles per day.
- Threads asking for personal tech support may be deleted.
- Politics threads may be removed.
- No memes allowed as posts, OK to post as comments.
- Only approved bots from the list below, to ask if your bot can be added please contact us.
- Check for duplicates before posting, duplicates may be removed
Approved Bots
founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Seems icky to me.
I donated my DNA to a research project. I have Crohn's disease and type 1 diabetes. I'm likely autoimmune prone.
I get updates about what it's used for. Usually trying to identify causes for autoimmune diseases. It feels good to help out the people fighting disease.
But that's sort of the point. You donated it knowing it was going to research. People using 23andme did not. And they will not be getting updates on the research either.
They were very clear it was for research in my memory. That was the reason I did it.
No, the project there referring to is run by 23andme. My whole family participates in the same research because so many of us have Crohn's disease.
Okay, but again, that is willing participation where you get informed of the results. Which is not what is being discussed here.