this post was submitted on 03 Oct 2023
99 points (95.4% liked)
Asklemmy
43411 readers
1519 users here now
A loosely moderated place to ask open-ended questions
Search asklemmy π
If your post meets the following criteria, it's welcome here!
- Open-ended question
- Not offensive: at this point, we do not have the bandwidth to moderate overtly political discussions. Assume best intent and be excellent to each other.
- Not regarding using or support for Lemmy: context, see the list of support communities and tools for finding communities below
- Not ad nauseam inducing: please make sure it is a question that would be new to most members
- An actual topic of discussion
Looking for support?
Looking for a community?
- Lemmyverse: community search
- sub.rehab: maps old subreddits to fediverse options, marks official as such
- [email protected]: a community for finding communities
~Icon~ ~by~ ~@Double_[email protected]~
founded 5 years ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Here's a more technical one: health information
It's a huge pain trying to transfer health information, between patients, doctors, different clinics, hospitals, etc. If you try and move far enough, your records might get transferred as a bunch of PDFs or scanned images on a CD.
There is no good standard that ticks all the boxes, so it's not just a matter of getting everyone to agree. A solid standard that addresses all the needs would be amazing, and it would help improve healthcare so much.
People would get control over their own health information (as much as appropriate without causing unnecessary harm), and we could properly use health tracking data from biometrics devices for personalized care. We could do large scale studies using properly anonymized data, and we wouldn't have proprietary systems to try and work around.
Best of all, you could go to a new clinic/hospital/ER and you wouldn't need to enter the same information all over again (likely missing clinically relevant data along the way).
Have you tried the OpenEHR standard? What's wrong with it?
I should have worded it differently, it's possible there is a best standard that I don't know enough about. I don't know enough about OpenEHR, but that's something I'll read more about :)
I completely agree. All the different EMR systems make doing any research just that more tedious. And like you said itβd be so nice to just walk into a health care facility and not worry about paperwork
FHIR is an excellent standard.
Some EHRs are pretty good about this nowadays. Epic, for example, allows you to share info across health systems. The user has to enable it though, which is a problem due to low adoption among older patients.
Also, this will be less of a problem in coming years due to increasing consolidation of health systems.
I can't speak to much of this, but I have a friend who works on the technical side of health insurance. Specifically he is helping with FHIR. I did some HL7 work a long time ago which lets health systems talk to each other. FHIR is supposed to be a more comprehensive offshoot (I asked if it was HL7 on steroids and wasn't corrected).
Unfortunately, I may have misunderstood. My career took me a different path than his so I'm way out of date on it.