this post was submitted on 30 Sep 2023
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Asklemmy
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I have epilepsy, and a few rare genetic disorders - there wasn't much of a healthy community for them on Reddit, especially my weirder shit, but I would love to see at least Epilepsy/Neurodegenerative/connective tissue disorder communities have a bigger presence. A few exist, but don't have posts, etc. My spouse has encouraged me to be the one to post, but I'm afraid of screaming into the void, just yet.
I think you'd have plenty of people join an epilepsy community as it's fairly common.
ED? I’ll post if you make it, but I have a super mild form. Honestly it feels like a positive thing 95% of the time, so I wouldn’t want to, like, humble brag?
yessss I miss the disability community and all the smaller subs where you could talk to other people about very rare/specific medical topics. Time to go search for the EDS gang on lemmy, or maybe do some void screaming if I can build up the nerve (・_・;)