discharge = discharge from hospital
this post was submitted on 30 Jul 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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This sometimes doesn’t work. My wife is severely ill. Has been for years. A couple years ago she developed a wound on her heel that just wouldn’t heal. She spent a week in hospital while doctors tried to figure it out. In the end, they just thought she was fucking nuts given her constellation of symptoms and the fact that she is a woman. This dumbfounded me because she had a fucking wound on her heel. I told her that the wound was finally proof that she was sick and it was a good thing. Man I was fucking so wrong.
We finally found an expert in mcas who was like, yep you have mcas, you are the worst I’ve ever seen and here is a med for it. She is still severely ill, but her heel wound, which inspired no curiosity in the hospital doctors, is finally closing.
I have so serious side effects from my anti-seizure medication it literally disables me more than my seizures (note that I rarely had seizures, it was just too scary for my parents), but every complaint of mine was just dismissed.
What medication?
Valproic acid. It's so infamous as a mood stabilizer that Scientologists were using it as their example of "bad medications", but once toxic positivity around mental health care became fashionable, people were forced to wipe the internet on documenting their misfortunes with the medication.