Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

Rules

Be excellent to each other
Absolutely no ableism.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

founded 4 months ago

MODERATORS

[email protected]

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Let's put her on saline & discharge right away (files.mastodon.social)

submitted 3 months ago* (last edited 3 months ago) by [email protected] to c/[email protected]

56 comments fedilink hide all child comments

discharge = discharge from hospital

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[–] [email protected] 16 points 3 months ago (2 children)

I have so serious side effects from my anti-seizure medication it literally disables me more than my seizures (note that I rarely had seizures, it was just too scary for my parents), but every complaint of mine was just dismissed.

Trouble with sleeping? Just sleep more, you will have more dreams and more health since more sleep means more health.
Trouble with memory and concentration? Either just try harder, or take notes about every small detail.
Weight gain even with a diet? Give up all your other hobbies and become a full-time sportsman!

[–] [email protected] 9 points 3 months ago

I’m so sorry everyone is so invalidated.

[–] [email protected] 2 points 3 months ago (1 children)

What medication?

[–] [email protected] 3 points 3 months ago

Valproic acid. It's so infamous as a mood stabilizer that Scientologists were using it as their example of "bad medications", but once toxic positivity around mental health care became fashionable, people were forced to wipe the internet on documenting their misfortunes with the medication.