this post was submitted on 26 Oct 2023
1 points (100.0% liked)

chronicpain

0 readers
0 users here now

For the broken, malfunctioning, pained people of the world and their friends/family. Got pain? This is the place to be.

PARTNERED COMMUNITIES

Neurodegenerative Disease Support

Mental Health

TMJ

Fibromyalgia

You Should Know

founded 1 year ago
MODERATORS
 

I'm getting an MRI on Sunday to see what damage has been done to my lumbar spine from a blood patch. Long story short, got lumbar puncture, CSF leak, blood patch = lumbar electric shocks + muscles around lumbar cramping + from soles of feet to lumbar spine feeling like I'm being stung by bees + sensation of ants crawling all over legs + feeling of something swollen in my lower back.

Like, I know something is really wrong with my lumbar spine. The dude who did my blood patch royally fucked up because during it I got bad nerve pain and it hasn't gone away 2 1/2 months later, got worse. Nerve pain and spine stuff isn't anything to mess around with especially when it's combined. I want to know what's wrong but at the same time I don't. Because, if I find out what's wrong then I can learn whether it's treatable or not (I doubt this) along with getting a diagnoses and then I can learn how bad all my symptoms will progress + what else is to come.

My neurologist thinks I still have spinal fluid leaking, inflammation, and a mass forming in my spine. So in short, arachnoiditis. No bueno! It don't feel good. What upsets me the most about this is what if we can get my other pain figured out but now I'm left with permanent damage in my spine? I've gotten Prednisone twice for this and it's helped both times.

Do you think I can go to the store and upgrade or buy a new spine? Sounds good to me!

no comments (yet)
sorted by: hot top controversial new old
there doesn't seem to be anything here