this post was submitted on 12 Sep 2024
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schizophrenia

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Hello,

This is an schizophrenia related community. share your experience, how you cope with it and other stuff related to schizophrenia.

have fun, be respectful to each other :)

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Hello,

ok so first of all let me list the symptoms that I have.

  • Paranoia - I always think that something could happen. for example I think I would die because of the boiling water I put one stove. somehow It could jump on me and I will die. this is just a simple example I have ton of example to give.
  • Delusion - I don't always feel this way but If someone don't give me exact reason why do they doing something I would assume they are doing that to harm me. I am not that delusional that I would not believe if they explain me why they are doing certain things.
  • Hallucination - This is the main symptoms of schizophrenia. I don't have it. really! I could explain why my psychiatrist thinks I have auditory hallucination. I talk to myself a lot and keep replying to my thoughts not voices thoughts. sometimes it feels like those thoughts are coming from someone else like they are talking to me. and I know it's inside my head. I doesn't even feel like normal voice. I won't try to find that person around me since I know that it's not real, I know all the conversation going on inside my head are imaginary. the problem it creates is when I am talking to my family members and at the same time I am also talking inside my head that renders me unable to pay attention to my family member who is trying to talk with me.
  • Delusion of reference - I kinda feel like everyone is watching me when I go to some public place. however it isn't that bad that I couldn't even go to public places. I do go to public places however It makes me uncomfortable since I keep thinking about scenarios in which something would go off or something bad would happen or I would do something that will draw everyone's attention. again it's not that bad since I can go to public places and do whatever business I have to do there.

maybe I should show this post my psychiatrist so he could better understand however he always say that you don't have to explain the symptoms to me I already know you have schizophrenia and I always argue that I don't have schizophrenia. I don't know I am so confused :/

I have seen a lot of videos about schizophrenia and I don't even have all the symptoms of it. maybe I have one or two symptoms but that's it. I am cognitively fine and you might even call me clever on some occasion.

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[–] [email protected] 7 points 2 months ago (1 children)

I knew someone who had it (deceased), but could not accept the fact they had it. For example, they would point at a white wall and ask why everyone was ignoring the face on it. When others said they don't see it, they got angry, assuming they are conspiring with the face to act like it's not there. If people brought up it might be hallucination they would have nothing of it. On their mind, they would basically be the only sane person. Everyone else was wrong/lying.

[–] [email protected] 2 points 2 months ago (1 children)

see I don't have that severe symptoms, I never had visual hallucination, I just had/have minor auditory hallucination. I won't tell anyone that faces are staring at me.

Everyone else was wrong/lying. I quite feel that my psychiatrist is trying to scam me for money. I really feel like this way tbh.

[–] [email protected] 3 points 2 months ago (1 children)

that was not the point. to put it simple, the point was: when you're a severe case, you may not be able to accept that.

okay, maybe you don't have shizo, but you still have hallus. so you need treatment before this causes some accident, right?

[–] [email protected] 3 points 2 months ago

yes, I am seeking professional help from my psychiatrist. I am just frustrated since it isn't working out for me. I still feel almost the same except the voices(which I knew wasn't real)

[–] [email protected] 4 points 2 months ago (1 children)

If you don't think you have schizophrenia, then that's something you may want to think about and/or discuss with a healthcare professional (same one or different). But I'd like to bring up some other things that might be relevant: psychological adjustment to a diagnosis, there should be patient benefits to a diagnosis, and that daily functioning may be more important than a diagnostic label.

Something I hear in your post is that you're not very happy about being diagnosed with schizophrenia. As a separate issue from the validity of the diagnosis, maybe you're having difficulty accepting and/or adjusting to the diagnosis. There is some stigma unfortunately around mental illness and schizophrenia.

How else is the diagnosis impacting you? Maybe you're receiving meds, maybe you have community or disability support or resources (eg, work program, support group). For a doctor, a diagnosis helps them with billing and clinical decision-making (eg, prescribing meds). There should be some benefit to you. Like, I have an asthma diagnosis, and that allows me to get puffers so I can breathe better.

Diagnosis doesn't define any one of course, and daily functioning may be more important. E.g., Are you working? Do you want to be?

Your symptoms don't sound very severe but on aggregate they do sound quite specific to schizophrenia. As someone else said, you do have a lot of insight into your symptoms. Unfortunately, I don't think that matters much in terms of whether you meet diagnostic criteria. The evidence of you having other symptoms is based on your own self-report and therefore kind of weak. But if you're losing focus having a serious conversation about your health due to thoughts in your head that grab your attention in front of a psychiatrist, that is something that I think might lead many Western healthcare providers to diagnose as schizophrenia or something pretty quickly. So, if you can exert more control in those situations, you might want to, at least in some settings. At the same time, Western psychiatry is not the only source of perspectives on the meaning of our inner monologues. You may want to explore other schools of thought that regard those thoughts as less pathological. You might get personal significance from less pathologizing perspectives.

Finally, check out Daniel Mackler, a former psychotherapist with a large swath of videos on youtube, who has a very different understanding of schizophrenia than mainstream psychiatry.

[–] [email protected] 3 points 2 months ago (1 children)

first of all thank you for the detailed and informative comment.

Something I hear in your post is that you’re not very happy about being diagnosed with schizophrenia.

yes, because even after diagnosed with schizophrenia I see no difference in my day to day life. I still get nervous/anxious while talking to someone and think they are plotting something against me. my psychiatrist always ask if I am hearing voices or not anymore and I always get confused since I have insight I don't know if the voices are just my subconcious. however after taking meds those "talking inside my head" has significantly decreased.

How else is the diagnosis impacting you? I have been taking Triflux daily. I would say it kinda working? I don't hear "voices"(intentionally quoting voices) anymore. that's it. I am still socially awkward and live inside my own head all the time. however I am functional, I do go to work and have meaningful conversation there, I can solve problems. so yeah, it's not affecting me that much. which brings the question "should I be still taking those meds?". I don't know the answer. I had quit taking meds in the past and my behavior went down hill, I started talking inside my head again and stopped talking with my parents, so my parents and psychiatrist told me to continue taking the meds.

check out Daniel Mackler Thank you for the recommendation!!

[–] [email protected] 3 points 2 months ago* (last edited 2 months ago) (1 children)

You're welcome :) If I may, it sounds like you want and/or need to be able to socialize more comfortably (to live a meaningful life), and your current meds may be helping to some extent but clearly aren't achieving that desired result on their own.

You could ask your doctor to try a different med (or more), and/or ask for something for anxiety specifically. Maybe you could access some kind of psychotherapy to discuss talking to people and that paranoia or access another kind of individual or group support. You may also want to hear more about living with schizophrenia from people who are themselves living with schizophrenia. I think the experience of controlling 'hallucinations' with medication yet having persistent uncorrected social deficits (ie, unmet needs) is unfortunately pretty common for people with schizophrenia (in large part due to a lack of adequate healthcare). Some of those perspectives might help normalize some of what you're experiencing and/or provide some applicable wisdom or advice (eg, for socializing). Some people with schizophrenia are thriving socially and otherwise despite living in a sane-ist society that unfortuantely has a long way to go in terms of inclusion and acceptance.

Meds may be one piece of the puzzle for being able to socialize comfortably and leading a meaningful life. My advice would be to focus on the whole puzzle - however you define wellness and whatever is meaningful to you. Loneliness can broadly mean "not getting one's social needs met' - which are basic human nature. Depending on how lonely you're feeling and how long you've been feeling this way, you may want to try one or more strategies. Again, people with lived experience might have some of the best recommendations there, at least to get started. I don't know if any of this is helpful, but I've appreciated the interaction, I wish you well, and you're welcome to reply or message me

[–] [email protected] 4 points 2 months ago (2 children)

I do want to talk with people who don't have severe schizophrenia just a mild version of it that's why I made this community however I am the only one posting here which is kind of sad.

I try to talk with people in real life but I couldn't since I start thinking about negative stuff :/

I might request my psychiatrist to connect me with someone going through the same situation as me.

I really wish people start posting here often so I could get some feedback from people living with schizophrenia.

[–] [email protected] 3 points 2 months ago

Yeah, Lemmy's still pretty small, unfortunately. That sounds like a good idea though! Maybe some kind of group for people with mild schizophrenia (and are around the same age perhaps). Asking your psychiatrist is a good idea. You might also want to do a little online searching to see if you find anything of interest locally, so you can ask for a referral to that specifically - just an idea. There might also be mild schizophrenia forums online outside of Lemmy that you might find with an online search. You might be able to check posts out without creating an account

[–] [email protected] 3 points 2 months ago

If you're in Ontario, this is a good tool for finding resources: https://connexontario.ca/

[–] [email protected] 3 points 2 months ago

Im not a psychiatrist.

But the things you’ve described here don’t sound normal. There’s a range of strength of most illnesses, so it’s possible you have it but not the strongest form of it.

[–] [email protected] 3 points 1 month ago (1 children)

I also think that I don't have schizophrenia. When I was diagnosed, I was scared. I was afraid because I have always been an activist; with everything I've seen about police brutality, I thought it would happen to me. I thought I was being pursued by the police forces. I believe that paranoia is somewhat logical. On the other hand, I think my negative symptoms are more a consequence of my anxiety and depression. Since I was a child, around 13 or 14 years old, I have had social anxiety and a tendency towards sadness. I don't believe that at 13 I was already sick with schizophrenia. I have never had hallucinations (neither auditory nor visual). Just "logical" paranoia and self-referential thoughts (which could be caused by social phobia). The issue is that since I started taking antipsychotics, I began to notice symptoms of irritable bowel syndrome. What makes me doubt is that there are people who have "denial of illness" and have a worse prognosis; I hope I am not one of those people. Nevertheless, I follow my treatment to the letter. Now I am fine; the only thing that makes it difficult for me to lead a normal daily life is the irritable bowel syndrome. From here, I want to send encouragement to all of you who are in the same situation. We will get through this with struggle, I am sure. A hug.

PS: I apologize if my message contains any errors. My native language is Spanish. This message is written with the help of an AI for accurate translation.

[–] [email protected] 2 points 1 month ago

I also thinks that after taking antipsychotics I kinda started feeling better so maybe I have schizophrenia, I don't really know. I feel like other people are against me in the college but that's just my delusion. my negative symptoms are also decreasing and I feel good these days, maybe the meds are working?!

I wish you luck in fighting with schizophrenia and knowing wether you have schizophrenia or not.

[–] [email protected] 1 points 2 months ago (1 children)

It's possible you do have schizophrenia, but from what you've written here, there are other conditions that sometimes present with similar symptoms, like obsessive-compulsive disorder, PTSD, or schizotypal personality disorder. From what you've written here, if you do have schizophrenia you have remarkable insight into your symptoms. I'd get a second opinion if you can

[–] [email protected] 1 points 2 months ago

if you do have schizophrenia you have remarkable insight into your symptoms. I am on medicine right now(Triflux) so it could be the result of the meds instead of me having remarkable insights.

I did get a second opinion and he came to the same conclusion. I don't know anything about the disorders you have listed here. (I have to look them up online)