ME/CFS (kbin)

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A place on kbin.social for those with ME/CFS. I made this during the reddit migration, just in case any of those with ME/CFS need a magazine on kbin. Posts, resources etc welcome. Check out our Microblogs section - a good way to get more fediverse content! If you are looking for basic resources, e.g. me/cfs organizations or fact sheets, there are some over at: - link for kbin = @[email protected]

link for lemmy= [email protected]

founded 1 year ago

My experience trying #TheNicotineTest (swg-empire.de)

submitted 8 months ago by [email protected] to c/[email protected]

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I have Long Covid and I'm very severe. I can only leave the bed to go to the toilet. I was almost getting to a point where I didn't have any PEM anymore with resting, so that might skewer my results.

I started with 3.5 mg over four days, then used 7 mg over seven days and tapered off with 3.5 mg over four days again.

I sometimes had troubles with the plasters staying on, especially while sleeping. But taping them on usually fixed that.

Apart from feeling more woozy than usual and feeling itchy at the taped spots I couldn't feel much of a difference.

Unfortunately on my last day I had an accident which forced me to take a shower, which drove me right back into PEM again. So I can't properly evaluate how the test went.

It will be a while before I do another test because I'm about to take part in a study. But I will post here when I'm doing another test.

If anyone wants to follow me they can do so via Mastodon/Threads @[email protected] or directly on my blog https://bjoern-tantau.de/.

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