this post was submitted on 14 Dec 2023
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Autism

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What is bothering you right now? (lemmy.world)
submitted 11 months ago by [email protected] to c/[email protected]
48 comments fedilink hide all child comments
 

We’re autistic, and one of the characteristics of being autistic is that we feel things deeply. On the positive side, when we are happy, we feel immense joy compared to others. On the negative side, we feel painful emotions more strongly than others as well. Because of this, many of us have been invalidated, insulted, or pushed away when all we were wanting was to share what we were going through and get support. Maybe even a really tight hug and someone telling us that it makes sense that we feel that way.

While we can’t give hugs, we can help each other by sharing our pain and having others help us through it. So here is that post. What’s bothering you? Why? Tell us.

Note 1: Sort by New to see the most recent posts.

Note 2: This post in particular will be especially moderated in terms of trolling, abusive, derogatory, offensive, disrespectful, invalidating, accusatory, or antagonizing responses to a user's pain. If your response is removed by mods, but you think you make a valid point, try rephrasing it in a compassionate manner that is not dismissing or accusatory.

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[–] [email protected] 10 points 11 months ago (1 children)

Right this moment?

My main regular doctor, who I slowly built a rapport and trust with over years and years, was intentionally infected with Delta by a patient who didn't believe in masks or vaccines. She survived but became disabled and left. I didn't get to say goodbye and she didn't get a chance to help hand off my care.

My new doctor that was assigned me to hates me.

She's straight up is completely uninterested in my care and is being an ableist gatekeeper of my meds. I've been on the same meds successfully for years and years and she is making me jump through hoops, not filling part of it, and she WITHOUT TALKING TO ME ordered a urine drug test.

I'm a rule follower and people pleaser and this was so fucking insulting. I haven't done it and she still hasn't said said anything. I'm going to ignore it until she talks to me but I'm also not confrontational.

I have so many health problems I can't even talk about with my doctor because she doesn't want to hear them. All she cares about is my meds and whether or not I'm a liability to her.

It's my worst nightmare because I had addict parents and have never done drugs and really don't drink. I'm very sensitive about being treated like I'm like them. She treats me poorly because she doesn't know me and doesn't trust me. I also suspect she's burned out.

The worst part is she's my roommate's doctor too and she's all smiles and nice, caring, and empathetic with my roommate (so they say).

I don't know what I did to make her hate me because she was hostile from the jump when I tried to introduce myself and my conditions.

I just had an appointment and I'm really upset and feel hopeless. I can't switch doctors or they will label me as doctor shopping and drug seeking.

Don't need advice, I'm not going to stand up for myself. I'm just answering the prompt.

[–] [email protected] 5 points 10 months ago

I can’t switch doctors or they will label me as doctor shopping and drug seeking.

Yes, you can, and please do if you feel up to it. Or could you take someone (like your roommate) as your advocate?