this post was submitted on 20 May 2025
509 points (99.6% liked)

Privacy

37916 readers
1148 users here now

A place to discuss privacy and freedom in the digital world.

Privacy has become a very important issue in modern society, with companies and governments constantly abusing their power, more and more people are waking up to the importance of digital privacy.

In this community everyone is welcome to post links and discuss topics related to privacy.

Some Rules

Related communities

much thanks to @gary_host_laptop for the logo design :)

founded 5 years ago
MODERATORS
 

Regeneron is to pay $256 million in cash to acquire "substantially all" of 23andMe's assets, including its massive biobank of around 15 million customer genetic samples and data.

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 83 points 1 day ago (2 children)

I never fell for it. I hope none of my siblings did, either.

I would have thought that data would be worth more. Maybe the AI guys will just steal it, instead?

[–] [email protected] 44 points 1 day ago (1 children)

Siblings and first cousins.

Most likely the data 23andme already gathered is enough to narrow down just about anybody in the US.

[–] [email protected] 29 points 1 day ago

340 million and me

[–] [email protected] 18 points 1 day ago (1 children)

I wonder if there was anything in the T&Cs that mentioned extrapolation of data leading to identifying genetic relatives and whether their consent was void on this basis. Or whether this could be grounds for interesting lawsuits from nonconsensual relatives being identifiable from the participants' data.

[–] [email protected] 12 points 1 day ago (1 children)

If we believe 23 and me, they have only recieved 11 data requests for 15 accounts and provided zero data to law enforcement.

https://www.23andme.com/transparency-report/

That is a report on formal law enforcement requests for direct account information. Law enforcement is known to use genetic ancestry, so either they are using other sites or just running the tests themselves instead of doing a formal request.

I couldn't find a case for suing companies, just defense requests to dismiss using the data in court but I might not be using the right search terms.

[–] [email protected] 4 points 23 hours ago (1 children)

Yes but what about the times law enforcement sent in the DNA and found relatives. Three are stories of that happening if I remember correctly.

[–] [email protected] 9 points 23 hours ago (1 children)

What about the thing I said?

Law enforcement is known to use genetic ancestry, so either they are using other sites or just running the tests themselves instead of doing a formal request.

[–] [email protected] 2 points 18 hours ago (1 children)

It's a bit of both from what I gather. I.e. The Golden State killer was caught through GEDmatch and 23AM users have to manually upload their DNA profile to GEDmatch. On the other hand GEDmatch gave unrestricted, undisclosed access to law enforcement to dig throught their database until users started complaining and it became opt-in to allow LE access.

Fun fact, GEDmatch is now owned by Qiagen which operates in around 25 countries. I wonder how many DNA profiles they have access to. I wouldn't be surprised if they've mapped the entire human species to some degree.

[–] [email protected] 2 points 8 hours ago

Wow guys, thanks a lot for the informative comments! I love how Lemmy isn't just a minefield of memes and jokes in the comments like Reddit