this post was submitted on 24 Oct 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

For me, we're getting pizza today because my caretaker is too tired to cook. Sure it's not healthy and expensive. But it's pizza! Woohoo! And as a bonus it's Hawaiian.

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[–] [email protected] 4 points 3 weeks ago

If the corset brace continues to be as effective as it has proven over the last 3 days, my life is flipping 180 degrees, and it looks damn promising. Last night, after working on my bedroom lab all day, I set my goals to target the end of this year. I want to finish several projects and try to document them to show what I've done with myself and some of what I have learned in the last 10 years. If I am still in good enough shape by the end of the year, I will get my license, a car, and a job. I haven't worked full time since before the crash that disabled me 2/26/14, and have not worked part time since 4/17. So, a little exciting for me. I always felt so very close to okay but it seemed to always be just out of reach. Who would imagine that all it took was a cheap $20 brace strapped around my ribs; certainly not 13 of the most reputable neurosurgeons from San Diego to Los Angeles, a DO, a physical therapist, or a half dozen pain specialists over the last 10 years.