Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I have hEDS. Moist heat pads are my go to after injury. That sounds gross but I feel like it helps the heat penetrate. A hugely helpful thing was a script for a muscle relaxer though. I get muscle spasms around the joints that slip the most (probably my body trying to hold everything together lol). My friend who also has EDS swears by a passionflower/cbd gummy for muscle relaxing, so maybe try that until you can get a prescription.
Physical therapy helps, too, and you can probably find one who will do video appointments.
Canes are pretty cheap, and they make collapsible ones. My hip and knee heal a lot faster when I use a cane after a dislocation. I don't really care for braces, but my friend really loves them, so ymmv. I much prefer using kt tape for stabilization. There's lots of guides on placement online. Just make sure you keep some oil on hand for when you're ready to remove the tape. Hypermobilty often comes with very sensitive skin that tears easily
Thanks! Tape helps a lot, but my skin is not a fan of it. It itches very bad, and reaching out to scratch (expecially when the itch is on my back) hurts my shoulders, or just the act of scratching hurts my fingers.