Here’s their GoFundMe
Edit: see below, SomeoneElse is correct.
this post was submitted on 05 May 2024
725 points (97.6% liked)
News
23014 readers
4 users here now
Welcome to the News community!
Rules:
1. Be civil
Attack the argument, not the person. No racism/sexism/bigotry. Good faith argumentation only. This includes accusing another user of being a bot or paid actor. Trolling is uncivil and is grounds for removal and/or a community ban.
2. All posts should contain a source (url) that is as reliable and unbiased as possible and must only contain one link.
Obvious right or left wing sources will be removed at the mods discretion. We have an actively updated blocklist, which you can see here: https://lemmy.world/post/2246130 if you feel like any website is missing, contact the mods. Supporting links can be added in comments or posted seperately but not to the post body.
3. No bots, spam or self-promotion.
Only approved bots, which follow the guidelines for bots set by the instance, are allowed.
4. Post titles should be the same as the article used as source.
Posts which titles don’t match the source won’t be removed, but the autoMod will notify you, and if your title misrepresents the original article, the post will be deleted. If the site changed their headline, the bot might still contact you, just ignore it, we won’t delete your post.
5. Only recent news is allowed.
Posts must be news from the most recent 30 days.
6. All posts must be news articles.
No opinion pieces, Listicles, editorials or celebrity gossip is allowed. All posts will be judged on a case-by-case basis.
7. No duplicate posts.
If a source you used was already posted by someone else, the autoMod will leave a message. Please remove your post if the autoMod is correct. If the post that matches your post is very old, we refer you to rule 5.
8. Misinformation is prohibited.
Misinformation / propaganda is strictly prohibited. Any comment or post containing or linking to misinformation will be removed. If you feel that your post has been removed in error, credible sources must be provided.
9. No link shorteners.
The auto mod will contact you if a link shortener is detected, please delete your post if they are right.
10. Don't copy entire article in your post body
For copyright reasons, you are not allowed to copy an entire article into your post body. This is an instance wide rule, that is strictly enforced in this community.
founded 1 year ago
MODERATORS
Something about this insurer stinks. How long does it take to drop a drug from their coverage, usually? And did they know the twins would need this drug before the mother knew? If that's the case, then her employer, who was also the insurance provider, had access to her healthcare records. They had access to all her information and likely paid her OB/GYN on the sly to tell them what was going on with the twins while in the womb.
NP just quit avocado toast
Novartis is another shit-stain-of-humanity drug company. Fuck Novartis.
load more comments
(1 replies)
May the insurance agency burn down with all employees inside 😊
It's not the employees fault. I know a person who's an actuary at an insurance company, they fight for each case and every day they're depressed at how little they can do but they fight for people when and where they can. Honestly it's a testament to the fact they're still there and how much they have to compartmentalize every day, well at least until beer thirty rolls around and we used to get into a bitchfest about how shitty the health insurance system is.
This is literally the setup for the show Leverage
Amurrrka! Land of the free!
We should simply pay for research with tax money and make drug patents illegal. It still would not fix this issue. We also need some form of public insurance.
In this case, the only option is bankruptcy.
load more comments
(1 replies)
Something else needs cut, apparently.
Why is the drug so expensive? Does it have to do with patent laws, or is the actual manufacturing process ridiculously expensive?
Does it require rare materials?
Pharma companies are basing pricing for these one-time-in-a-life-dose drugs on supply and demand principles. There will never be high demand for these drugs because the conditions are so rare. And only needing to be dosed once for a complete lifetime cure means that there is no recurrent payment happening the way you would have with a drug that needed to be dosed repeatedly over a lifetime.
You'll hear all the usual excuses about "muh R&D costs 😭😭" but the truth is they're pricing it this way because they can. Because somewhere in the bible of capitalism, this is the way things work.
(R&D costs are just an excuse for greed: https://www.treatmentactiongroup.org/resources/tagline/tagline-fall-2018/pharma-lies-people-die-myth-busting-fact-sheet-on-medicine-development-and-pricing/)
I am fairly confident it must be made from unicorn blood and the glandular excretions from the lochness monster.
Really? I thought it required catching a virgin piranha by hand in the middle of the Amazon.
They must have switched suppliers.
load more comments
(1 replies)
load more comments
(1 replies)