this post was submitted on 05 Sep 2024
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Piracy: ꜱᴀɪʟ ᴛʜᴇ ʜɪɢʜ ꜱᴇᴀꜱ

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You wouldn't pirate a medicine, would you?

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[–] [email protected] 32 points 1 month ago (10 children)

I firmly think this would be a boon for many people; owning one of these is likely a lifeline that even small town physicians could utilize to dispense drugs freely or cheaply to patients in need.

This is something that I think small-town pharmacies could use to create compounds in cases of drug shortages. I think tools and programs and small labs like what are discussed in the article are a positive force for good; and that they should be not only allowed, but encouraged, for many drugs that are expensive, unavailable to someone in need and can be readily synthesized safely with a basic college level of chemistry training by someone in a pharmacy.

I think the potential risks and downsides are small right now; and I think more of it should be encouraged gently so that we can find out quickly what the flaws and limitations are so that we can put regulatory guardrails around it so that people do not harm themselves.

[–] [email protected] 15 points 1 month ago (9 children)

Yeah, one of the meds they talk about making is Vyvanse. That's having a serious national shortage right now due to a combination of the DEA and corporate greed. It's illegal for compounding pharmacies to make it but there's no technical reason they couldn't. Same for lots of this stuff.

[–] [email protected] 3 points 1 month ago (2 children)

That would be great. My insurance was already not covering Vyvanse super well, but I at least had the extra coupon thing from Vyvanse that was getting it under $80 per month. But the start of this year Vyvanse stopped the coupon since there was a generic and my insurance was also pushing that. Which I didn't realize was a thing until I was about a week and a half past my refill and just kept getting auto calls from Walgreens that it was delayed.

Found out it was because the generic was on back order and they literally didn't know when they (or any location in my county or the next one over) would even get it. So I had to demand that they just fill the name brand since I can't function at work. The pharmacist was like "It will be over $200, are you sure you don't want to wait?". And all I could say was "Not like I really have a choice atm if I want to have my meds." Which while the price was (and still is) fucked. I am glad I didn't just keep waiting. I just said to put it on my file that I request the name brand if the generic isn't available.

It does seem that the insurance has also seen this happening to a fuck ton of people as they are back to at least covering what they were before. Which is still costing me around $125 or so a month since Vyvanse didn't re-instate their coupon. I had thought about going back to Adderall, but it doesn't last as long and I have heard there have been shortages for both name brand and generic before Vyvanse and its generic.

[–] [email protected] 4 points 1 month ago (1 children)

Man, in lots of places the you can't even get the name brand so at least there's that.

I have heard, don't know how true it is, that hospital pharmacies have first shot at the supplies so they're less affected by stuff like this. For what that's worth.

[–] [email protected] 2 points 1 month ago

For sure. It might be that my city has a regional hospital in addition to being pretty close to a much larger city with multiple hospitals. Also likely helps that the larger city nearby has an airport which UPS and Fedex (might also have others) hubs in it. Along with those shipping companies having big ground sorting/shipping facilities in the same city.

I can currently roll with the prices as long as I can still get my meds. Just hoping that the generic versions are able to catch up next year.

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